Sunday, October 31, 2010

So Happy at Home

Kian literally started smiling the day we got home from the hospital. He's so happy to be here. And we're so happy to have him here. This was a cape we found in a box of hand-me-downs, and it's perfect for our little super-baby. Photos of actual Halloween costume coming soon.

Smiles for Mommy. (rare)

Smiles for big sis.

Smiles for toys.

How come they will play outside when its 38 degrees and lots of snow, but when its 75 and beautiful they want to watch TV? They begged me to let them play outside in the snow 2 days in a row. By themselves. I don't get it.

Smiles for Daddy. All the time. Ridiculous. In a good way.

See what I mean?

Silly girls. Dancing with blankets on their heads.

Friday, October 15, 2010

Pictures of our time at PCMC

This is the EVD from Kian's end.


The rest of the external drain. It's gravity controlled, so they have to line up the white ribbon to his ear or nose when he changes position and move the thing up or down.

Hanging out in the room.

He clings like a baby monkey.

The setup. Computer, monitor, crib, IV pole with antibiotic pump (6 times a day) and EVD device.

Cuddle time.

Family time ("Walk quietly, don't cry, no screaming, sit still, don't touch that, sit down, don't spill. Hey, want to watch PBSKids.org?")


We went to the zoo the day Kian was supposed to go home (but surgery was postponed). It made us all feel a little better. Except perhaps Kian.

And a picnic at This Is The Place.

Going home day!

Tuesday, October 12, 2010

We're Home!!

We made it home today. Kian did so much better after this surgery than any of the previous ones. His color was better, his pain was better, his breathing was better. We are so relieved to be done with this, and hope we don't have any more long-term hospitalizations for a long, long, long time. His shunt (or part of it?) will have to be replaced sooner rather than later, because they couldn't fit the full sized one in this time, so we know we have that to look forward to, but hopefully other than that we will just stay home.

I'm going to use this post as one big thank you note. To everyone who helped us in the past 4 months, thank you. You know who you are, even if we don't. If you watched our kids, brought us dinner, mowed our lawn, sent us a gift card for gas, brought by baby gifts, prayed or fasted for us, thank you. And if you did anything else. Thank you thank you thank you. I can't imagine having to go through something like this without the support of family, friends, neighbors, and ward members. We are so blessed to have you in our lives. Seriously. Thank you.

Pictures to come soon, I promise.

Monday, October 11, 2010

Success!!

Kian's EVD was removed today and a new shunt placed. Yea! He's not feeling too well yet, but we should be home tomorrow.

Friday, October 8, 2010

Just Kidding

So Kian's surgery has been postponed until Monday. His ANC, which is a white blood cell value, is too low, so he wouldn't be fully armed to combat infection. So they are stopping his antibiotic and giving him Neupogen to help increase his ANC, and hopefully he'll be ready to go Monday, and home Tuesday.

Tuesday, October 5, 2010

Home Saturday!

We just got word that the surgery will be on Friday to put in the new shunt, so if everything goes according to plan we will come home on Saturday! Yea!!!